Our son Caleb is 2 years old and before he was even born he’s had huge mountains to climb. At seven months pregnant, we found out Caleb had a large mass growing on his left lung and they said the outcome of survival was not good. The doctors told us that if he did survive he would not have a good quality of life and would face many obstacles. They also told us that if Caleb had to be delivered early due to complications from the mass that we would be risking his twin brothers life as well by delivering them both early. We were devastated and terrified, but continued to have faith and believe our little man would survive!
The next seven weeks were heart wrenching, as we had to go in weekly for ultrasounds to see if Caleb was still hanging on and continuing to fight. At 35 weeks Caleb and his twin brother were born. Little did we know Caleb's fight was just beginning. He was not breathing when he was born and had to be intubated right away. He spent several weeks in NICU, but never stopped fighting.
At just seven months old Caleb had surgery to remove the large mass. It was so big they ended up removing the whole top lobe of his left lung. Our mountains didn’t end there. Our medical journey or superhero adventures as we like to call them continued. Caleb has been in and out of the hospital and endured multiple surgeries. Over the last two years he has been diagnosed with so many things I have lost count: Hydrocephalus, Periventriculiar Leukomalacia, White Matter Disease, Seizures, and Global Developmental Delay to Chronic Lung Disease and a Laryngeal Cleft, of which they are currently checking to see if this is causing aspiration in his lungs.
We do not know yet what the future holds for our sweet boy or the prognosis and severity of his white matter disease, but we do know one thing....We will never stop fighting for our little superman! We will go to the ends of the earth to make sure he has the best care and the best quality of life he can have. We will keep going no matter what, because the love we have for our child is so pure, so real, and so rewarding that it goes beyond anything I have ever known. A love that is nothing less than unconditional and knows no boundaries. Who knew my greatest teacher would live in the heart of my two-year-old special needs son. Someone who can’t even talk yet has taught me more in two years than I could ever teach him. He has taught us that life is about the journey and all of its ups and downs. To enjoy the simple things, because sometimes those are our greatest achievements. The love you have for your child gives you more strength than you ever knew you could possibly have. It gives you the ability to keep going when you have nothing left.
Caleb’s love for life never changes no matter what obstacles may come his way. He lights up with that contagious smile at the littlest of things that I once would have taken for granted. They now mean the most and are the best parts of my days. The way his precious giggle reminds me to not be afraid because tomorrow is another day and that at the end of the storm is a beautiful rainbow. When his little hand fits perfectly in mine I’m reminded that nothing else matters except that very moment right there where you realize at the end of the day he is perfect in every way. He is ours and we love everything about him. Because even though we are a hot mess these days, to Caleb we are just what he needs. As hard as it is at times to not be overcome with emotions, I will not let them define me. At the end of the day all of the stress, tears and fear is not going to make anything better, but living life through Caleb’s eyes and loving purely and unconditionally the way he does will. It brings me more happiness than I could ever dream of, because Caleb lives to love! ~Supermom Lyndsey
You can continue to follow Caleb's journey by liking his Facebook page:
Caleb’s Superhero Adventures